When a life limiting diagnosis is received by a person within the disability community, having competent support, guidance and experience with disabilities becomes essential. To have someone with a personal connection to the disability community is most ideal and for the individual and their families, finding someone with professional experience within the developmental sector is a comfort.
Our contemporary society is lacking the skill and training for caring for those nearing the end of life. So much so that end of life care has become medicalized. Yet for some time, end of life Doulas have been playing a part in the end of life equation. The term Doula describes a trained and informed care giver. They offer non-medical support to a person who is preparing for a major life transition, typically birth or death.
End of life doulas provide emotional, social, spiritual and practical support for those nearing end of life. SEOL CARE’S founder Carrie Batt has been immersed in the disability community since childhood both personally and professionally. Carrie is an end of life Doula who offers end of life care and support to people across the disability spectrum.